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The End Of The Ryan White/ActUP HIV/AIDS Legacy in California?

by: Brian Leubitz

Mon Jun 01, 2009 at 15:00:00 PM PDT


Ryan White wasn't from California, and only visted a few times as far as I can ascertain.  However, he was here in 1990, just before his death, to host a post-Oscars with none other than legendary AIDS heros, the Reagans. Yup, one of his last public appearances came with the man whose legacy on the HIV/AIDS crisis was well summarized by Allen White in the SF Chronicle a few years ago as "Silence Equals Death."

But while California had a long history of queer activism on AIDS, including the founding of two of the earliest AIDS-focused organizations in 1982, the San Francisco AIDS Foundation and the AIDS Project Los Angeles. It was Ryan White, a boy-next-door kind of kid that made Congress stop simply averting their eyes to the crisis that was occurring.  And just four months after White's death, the Ryan White CARE Act was signed.  While White's story was just one of many reasons for the passage of what has become a monumentally important piece of legislation to the many AIDS patients across the country, his story broke the mold of thinking that AIDS was merely isolated to one community. Incidentally, AVERT, an international HIV and AIDS charity based in the UK, has a great web section on the history and science of the AIDS crisis.

Yet, today, amidst the budget crisis, we are now facing the end of the Ryan White Legacy. In the latest budget proposals, state AIDS funding is in danger of being completely eliminated.

"Funding for all aids programs up and down the state will be cut, pretty much eliminated, and that's got all of us very worried, because its quite serious," said Dr. Judy Auerbach of the San Francisco AIDS Foundation. (CBS5 6/1/09)

These cuts aren't academic in the slightest, as the above news story points out, substantial cuts to AIDS funding will mean that people will not be able to afford drugs. They will miss doses or stop taking it all. Not only will they become sick and die, but the virus will grow stronger.

California was once the nation's leader on AIDS care. Heck, go check out the Office of AIDS, and even despite all the cuts, there is still hope for the future and finding a cure. In San Francisco, the PrepareStudy is working to find a vaccine for HIV.

Ending funding for HIV/AIDS will quite literally kill people. There can be no debate on that subject.  And if that's what Arnold and the Republicans want to do, they should have to say that to the faces of every single one of these people.

Brian Leubitz :: The End Of The Ryan White/ActUP HIV/AIDS Legacy in California?
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because these proposed cuts haven't gotten nearly the coverage they should.  The ADAP program is, for many, the last resort in obtaining life-saving medication.  I try to avoid hyperbole, but there are many people for whom a loss of ADAP coverage would be a death sentence.  When you combine the proposed Medi-Cal cuts with the proposed ADAP cuts, it will take HIV care in California from being one of the best in the nation to one of the worst.  One step that our Congressional delegation could take that might ease part of the budget situation for the ADAP program would be to move to close the sizable Medicare Part D "donut hole" for people living with HIV.  Right now, ADAP funding picks up the donut hole for anyone who is eligible.

"Not only will they become sick and die, but the virus will grow stronger." (0.00 / 0)
I don't understand this sentence; or rather, I am deeply afraid that I do.  Could you explain what this means?

Not taking proper dosage (0.00 / 0)
When people do not properly take their full course of drugs, the virus can become resistant to one part of the cocktail or another. That makes it tougher to combat if they go back on the drugs.  Even more troublesome is that if that virus spreads, it would carry that resistance forward.

That's just my limited understanding of how this all works. People are free to correct me on this. I'm a little hesitant on the science of this.

I'm proud to work for Kamala Harris for AG.


[ Parent ]
No need for a correction... (0.00 / 0)
It's a fine summary in layman's terms.  If I were to add anything, it would be that there are many people who already have a drug resistant strain.  For people in that situation who are responding to their current therapeutic regimen, an interruption in treatment would likely be problematic, since it would remove another treatment oprion from an already limited number of those available.  

[ Parent ]
That's a serious public health reason to continue treatment. (0.00 / 0)
Even if you're willing to be a cold bastard and say "to hell with those impoverished AIDS patients," it's just like leaving swine flu partly treated - there is an overall public health reason to properly treat the disease, so as to not unnecessarily convey immunities upon the virus and make it that much more difficult to eradicate or contain.

I've been watching these last two weeks with fear that things will only get worse :(.  California has never been perfect, but this descent is unprecedented.  Everything is being stripped away in a matter of weeks.


[ Parent ]
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